Saturday, January 5, 2008

08 - The Bone Marrow Transplant Visit

Oh, Almost forgot to tell how the visit with the Bone Marrow Transplant Center went. Nothing too exciting really, except that I made it to LA within 45 minutes, meaning I arrived an hour early for my appointment. Go figure, leaving at 8AM you’d figure on a nice traffic logged journey (almost a little disappointed). So, naturally I actually had to wait ‘till it was my appointment time (though I got my Blood Pressure taken, height measured and was weighed in an hour early).

First I met with the Bone Marrow Transplant specialist who explained some about the disease and the bone marrow transplant and why they were having me meet with him in the first place; basically to get the process started just in case the drugs didn’t work, and to see if my sister would be a match to me. I asked a few questions I had, he did a physical (I was just starting my cold and had the aforementioned “kennel” cough) and he ordered some blood tests. Then I got to meet with the Social Worker who asked me how me and the family were coping with things, what my support system was like (more for bone marrow transplant reasons than mental health reasons I think) etc. etc.. Basically they wanted to make sure I wasn’t suicidal under all of this. They took down my sisters address who should be receiving a kit to get her blood tested which she would have to FedEx back to the City of Hope Hospital. Hopefully we’ll be match but our personalities are quite different (not sure if that makes a difference), and I’m a lot prettier (I’m sure that’s a factor) so chances are slim :-). On a side note I did mention to the Social Worker that a meeting like this would probably be a bit more useful right after you’re told you have Leukemia That way they might be able to talk you out of the cliff jump you’re about to make rather than have a no show for their appointment. Don’t think my suggestion will change the procedures in place, but at least I got my 2 cts in. After that it was on to the blood tests……….

Having blood drawn twice a week for the past couple of weeks I’d kind of gotten used to the blood test thing, but this time we went beyond anything I’d seen before. As the printer started spitting out labels the receptionist told me to go and take a seat so they can get started, she’d bring the rest of the labels in a minute. Casually asking how many vials of blood are being drawn she replied she wasn’t sure but it seemed to be a few. Well after counting the glasswork in front of me on the table it turned out to be 24 vials, which naturally took a few seconds to get filled. I was expecting a glass of OJ or something, but that didn’t seem to be necessary. In all honesty my hand was starting to feel a little numb but I wasn’t faint or anything. However, when you see the stacks of glass tubes in front of you, you’re kind of put back in place about the seriousness of the whole Leukemia thing. All in all I definitely left feeling a little more depressed than I did when I came.

4 comments:

Rhonda Radliff said...

Hey Kiddo,
Our lives are really running in sync. My 'kennel cough' ended around the 7th... and I got the codeine syrup too! Talk about a party bonus!

I had the beginnings of pneumonia, some cloudy stuff on the lungs. It's all good now and I'm back on the Sprycel. I'm taking a different approach to the meds and side effects this time round (after the pneumonia, I got a 10 day break on meds).

This time I'm eating as much raw green food as I can manage. It's been a learning experience, but my side effects are MUCH better and I am able to work more. (ok, not sure about the better part, but you get the idea.)

Holidays were fun. Getting to feel better is good. Learning how to say leukemia without flinching... still taking some work.

Speaking of work... when someone is getting all wrapped up about something at work I just take a breath and think "they must not have leukemia. this doesn't really matter much in the 'long run' so I'm going to smile and just keep working." It's taking the sting out of some of life's previously worrisome details.

It's all about perspective, and maybe green veg. Oh, and don't forget the stout beer. I hear it's got lots of stuff to help build red blood cells. Hahahah.

enjoy my cml buddy,
Rhonda

Anonymous said...

Thank you for your post. I anticipate making a trip to a transplant center soon.
Chip
chipwv.wordpress.com

Anonymous said...

Hai Rob,

Ik probeerde je gisteren te mailen nadat ik je berichtje had ontvangen. Ik ben er erg van geschrokken en wil je veel sterkte wensen. je email adres werkt niet als ik probeer te reageren. wat is je juiste adres? Heel veel sterkte en ook voor Jill. Ook Floortje, mijn vrouw inmiddels, is erg geschrokken. Het klinkt misschien als een onbekende naam maar het is de Flootje die jij nog kent als de vriendin van Koen. Inmiddels is zij 8 jaar mijn vriendin geweest en sinds een klein jaar mijn vrouw. Stuur me je gegevens svp zodat ik direct contact met je kan opnemen.

veel succes en sterkte,

Jeroen en Floortje

Anonymous said...

he oud huisgenoot,

kreeg deze link doorgepast van Jeroen en heb even "ge-gvd't". We hebben elkaar jaren niet meer gesproken, noch gezien, maar wil je bij deze heel veel sterkte en kracht toewensen de komende tijd! Uiteraard ook namens Debbie (al weer 10 jaar samen waarvan 2 jaar getrouwd) en onze zoon Tijn (14 maanden). Het klinkt cliche, maar het ik meen dit serieus: mocht ik iets voor je kunnen betekenen, schroom aub niet.....

Groet,

Remmelt